Letters to Lior

Trsiomy 18


There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features. Trisomy 18 occurs in 1 in 3,000 live births.It is three times more common in girls than boys. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher.Infants who survive, experience serious defects and commonly live for short periods of time. Trisomy 18 affects individuals of all ethnic backgrounds. Trisomy 18 severely affects all organ systems of the body.The majority of children who are born with Edward's syndrome do not live past their first year of life. Their average lifespan for half of the children born with this syndrome is less than two months; approximately ninety to ninety-five percent of these children die prior to their first birthday. The five to ten-percent of children who do survive their first year experience severe developmental disabilities. Children who live past their first year require walking support and their ability to learn is limited. Their verbal communication abilities are limited as well, although they are able to respond to comforting and have the ability to learn to smile, recognize and interact with caregivers and others. They can acquire skills such as self-feeding and rolling over.

Tuesday, May 8, 2012

Heavenly birthday

Hiya my precious little monkey.

Today mom is going to be taking this post to wish little Miks a happy heavenly birthday.

Happy Birthday to you, happy birthday to you, happy heavenly birthday dear Miks, happy birthday to you !!!!!!!  ..... okay my singing is not so great :-)

I know you are dancing, singing and rejoicing in heaven today little blue eyed angel.

Remember, although your mommy's heart is aching today, as it does every other day, she is ever so proud of you and misses you immensly as does daddy and your brothers. I wish I could be near mommy to give her a hug and say:

"Miks love for you is never ending, her love is more than all the grains of sand in the desert and  she is watching over you and seeing just how awesome you are and is proud to be your baby girl"

Look down on your family baby girl and see their never ending love for you. Let mommy and daddy and your brothers know of your presence and just how much you love them too.

HAPPY 2nd BIRTHDAY MIKS !!!

PS: Have some angel cake for all of us here on earth !!
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