Letters to Lior

Trsiomy 18


There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features. Trisomy 18 occurs in 1 in 3,000 live births.It is three times more common in girls than boys. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher.Infants who survive, experience serious defects and commonly live for short periods of time. Trisomy 18 affects individuals of all ethnic backgrounds. Trisomy 18 severely affects all organ systems of the body.The majority of children who are born with Edward's syndrome do not live past their first year of life. Their average lifespan for half of the children born with this syndrome is less than two months; approximately ninety to ninety-five percent of these children die prior to their first birthday. The five to ten-percent of children who do survive their first year experience severe developmental disabilities. Children who live past their first year require walking support and their ability to learn is limited. Their verbal communication abilities are limited as well, although they are able to respond to comforting and have the ability to learn to smile, recognize and interact with caregivers and others. They can acquire skills such as self-feeding and rolling over.

Thursday, April 7, 2011

Yay - well done !!!!!

Well done my little munchkin - I am sooooooooooooooooooooooooo proud of you - you just have a will that goes on forever :) !!!!!!!!!! phhh what the hell do the doctors know :)

Lior has now started to try and roll onto his tummy, he gets it right, but now has to figure out that he needs to move his arm out from underneath him, baby steps - he is doing so well. He is just so full of life and bringing so much sunshine into our lives. Talks non stop, or should I say shouts non stop, loves the attention he gets from his sisters and has even started laughing in his own little way.


The girls are going to be spending christmas with us this year, it is actually their other parents turn but because this may be the only Christmas that we may have with Lior we have asked for the girls to be with us. They are all so excited and so are we.

Just want to wish everyone an awesome and blessed christmas, may all you wishes come true and may God be with you and Bless you in every way possible!!!!
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