Letters to Lior

Trsiomy 18


There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features. Trisomy 18 occurs in 1 in 3,000 live births.It is three times more common in girls than boys. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher.Infants who survive, experience serious defects and commonly live for short periods of time. Trisomy 18 affects individuals of all ethnic backgrounds. Trisomy 18 severely affects all organ systems of the body.The majority of children who are born with Edward's syndrome do not live past their first year of life. Their average lifespan for half of the children born with this syndrome is less than two months; approximately ninety to ninety-five percent of these children die prior to their first birthday. The five to ten-percent of children who do survive their first year experience severe developmental disabilities. Children who live past their first year require walking support and their ability to learn is limited. Their verbal communication abilities are limited as well, although they are able to respond to comforting and have the ability to learn to smile, recognize and interact with caregivers and others. They can acquire skills such as self-feeding and rolling over.

Monday, June 20, 2011

Sending lots of Love, Hugs and Prayers

Morning sweet pea. You have had a really good weekend and been your normal playful self, so not much to really update on, but mommy wants to take this time and send all our love and hugs and prayers to Aunty Taryn. Little Mikayla is in hospital and her mommy says she is not doing well at the moment, her lung has collapsed and her little heart is taking strain. So I want Miks and her mommy to know that they are in our thoughts every second of the day, and that we know little Mikayla is strong and such a spirited little fighter and that she will pull through this and prove every body wrong like she does all the time !!!

Get well soon little Miks, and lots of love and ((hugs)) to you and your mommy !!!!!!
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