Letters to Lior
Trsiomy 18
There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features. Trisomy 18 occurs in 1 in 3,000 live births.It is three times more common in girls than boys. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher.Infants who survive, experience serious defects and commonly live for short periods of time. Trisomy 18 affects individuals of all ethnic backgrounds. Trisomy 18 severely affects all organ systems of the body.The majority of children who are born with Edward's syndrome do not live past their first year of life. Their average lifespan for half of the children born with this syndrome is less than two months; approximately ninety to ninety-five percent of these children die prior to their first birthday. The five to ten-percent of children who do survive their first year experience severe developmental disabilities. Children who live past their first year require walking support and their ability to learn is limited. Their verbal communication abilities are limited as well, although they are able to respond to comforting and have the ability to learn to smile, recognize and interact with caregivers and others. They can acquire skills such as self-feeding and rolling over.
Happy birthday my boy,you have lots of mommies who love you and wish you well.Kim-Tree last night I kept thinking of Lior and God works in mysterious ways,instead of asking Him why,praise Him.There is a group for T18 moms that I think you can join and can refer them to your site.http://www.dailystrength.org/c/Trisomy-18-Edwards-Syndrome/support-group.Stay blessed.
ReplyDeleteThank you so so much. God has definately brought me an angel in you !!!
ReplyDeleteHappy birthday little champion! Was thinking about you lots, cos your birthday is a day before mine... and just a week and two days before little Miks! So we were celebrating with you (in spirit)
ReplyDeleteEveryone is so proud of you!