Letters to Lior

Trsiomy 18

There are 23 pairs of human chromosomes. In Trisomy 18 (Edwards syndrome), there is an extra chromosome with the 18th pair. Like Trisomy 21 (Down syndrome), Trisomy 18 affects all systems of the body and causes distinct facial features. Trisomy 18 occurs in 1 in 3,000 live births.It is three times more common in girls than boys. Unfortunately, most babies with Trisomy 18 die before birth, so the actual incidence of the disorder may be higher.Infants who survive, experience serious defects and commonly live for short periods of time. Trisomy 18 affects individuals of all ethnic backgrounds. Trisomy 18 severely affects all organ systems of the body.The majority of children who are born with Edward's syndrome do not live past their first year of life. Their average lifespan for half of the children born with this syndrome is less than two months; approximately ninety to ninety-five percent of these children die prior to their first birthday. The five to ten-percent of children who do survive their first year experience severe developmental disabilities. Children who live past their first year require walking support and their ability to learn is limited. Their verbal communication abilities are limited as well, although they are able to respond to comforting and have the ability to learn to smile, recognize and interact with caregivers and others. They can acquire skills such as self-feeding and rolling over.

Tuesday, May 2, 2017

7 years old :)

My precious little angel

So you are 7 years old now :) and we wish so much that we could have spent your birthday (and every other day) with you.

As your sister says, you should have been starting school this year (even if it was a special school) and we sincerely believe that everything that you should have been doing on this earth, you are now doing up in heaven. I like to picture you running freely and laughing, because boy did you love laughing and shouting and make noise like normal little boys do. Shout shout shout big boy, make a noise big boy, play and be merry my angel and know that we love and miss you more each day.

HAPPY 7th BIRTHDAY my binky bums.

All my love and kisses - till we meet again

Love mommy <3

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