Hello my sweet baby boy - I know you are no longer here with us, but I still find it healing to write to you - I miss you so !!
We had your Celebration of Life Service on 19 May, and only once we had finalized all the arrangements did mommy realize it was your sister's birthday L
Tannyth was more than happy with it, she said that it made her day even more special.
Standing up in the chapel was the hardest thing that I have ever had to do, I was and am completely heartbroken, but I was so proud to talk about my little boy and how your little light shined for everyone.
We could not have imagined a more beautiful service. It was just the way we wanted it. Daddy and I decide that we needed to give you a really beautiful final salute and by doing this we would release a balloon for every day of your little life - 1475 balloons. There were 4 white balloons which daddy and I released and the rest were blue. It was the most beautiful and magical sight ever for an incredibly magical little boy. Even the gentleman who drove you away, drove so slowly because he was in awe and didn't want to go ahead of the balloons.
There was no way of knowing how many people would attend your Celebration of Life. There were close to 160 people and I got so many apologies for not being able to make the service. I was in awe big boy, I know that there are so many more people that would have liked to attend had they been close by. I finally realized that we will never be able to fathom how far and wide your little light has reached and words cannot begin to express how proud I am of our beautiful little Trisomy 18 angel.
We continuously have a candle burning in the lounge for you, and it is comforting for us so we will keep burning one for as long as we need to.
We got such a wonderful surprise from uncle Steve the other day, he sent us a message to say that he bought a star in the Northern Hemisphere and named it after you with this message on the certificate
"Hold tight the days you loved, laughed and played
Include the morning giggles and snuggles
Years back and forward Lior's love remains
Like wings of a Dove showing strength and solace
The Barrington Light shines for always - Love you'
It was the most beautiful gesture ever and now we know that your light will shine down on us for eternity.
We have received so much love and support and compassion from so many people that it is actually hard to believe. But for us this just shows the impact that you have had on so many. You have changed so many people's lives big boy, more than anyone would ever know - and I am so proud say that I am a mommy of a Trisomy 18 boy.
Miss you with all my heart my sweet angel
We had your Celebration of Life Service on 19 May, and only once we had finalized all the arrangements did mommy realize it was your sister's birthday L
Tannyth was more than happy with it, she said that it made her day even more special.
We could not have imagined a more beautiful service. It was just the way we wanted it. Daddy and I decide that we needed to give you a really beautiful final salute and by doing this we would release a balloon for every day of your little life - 1475 balloons. There were 4 white balloons which daddy and I released and the rest were blue. It was the most beautiful and magical sight ever for an incredibly magical little boy. Even the gentleman who drove you away, drove so slowly because he was in awe and didn't want to go ahead of the balloons.
There was no way of knowing how many people would attend your Celebration of Life. There were close to 160 people and I got so many apologies for not being able to make the service. I was in awe big boy, I know that there are so many more people that would have liked to attend had they been close by. I finally realized that we will never be able to fathom how far and wide your little light has reached and words cannot begin to express how proud I am of our beautiful little Trisomy 18 angel.
We continuously have a candle burning in the lounge for you, and it is comforting for us so we will keep burning one for as long as we need to.
"Hold tight the days you loved, laughed and played
Include the morning giggles and snuggles
Years back and forward Lior's love remains
Like wings of a Dove showing strength and solace
The Barrington Light shines for always - Love you'
It was the most beautiful gesture ever and now we know that your light will shine down on us for eternity.
We have received so much love and support and compassion from so many people that it is actually hard to believe. But for us this just shows the impact that you have had on so many. You have changed so many people's lives big boy, more than anyone would ever know - and I am so proud say that I am a mommy of a Trisomy 18 boy.
Miss you with all my heart my sweet angel
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